Taylor was born at PinnacleHealth Harrisburg Hospital on November 17, 2014 at 27 weeks and 3 days gestation. She weighed just 455 grams or 1.05lbs. Taylor was severely growth restricted and the first few hours to days of Taylor’s life were extremely critical. She spent 437 days between 3 hospitals. She had a breathing tube, was placed on a ventilator, and required high amounts of oxygen. Her lungs were underdeveloped, her heart was enlarged and she suffered brain bleeds. When she was 2 months old she was transferred to Hershey Medical Center for 10 days to undergo laser eye treatment for an eye disease that can occur in preemies and cause blindness if not treated. A few months later Taylor had hernia repair surgery. As time passed, Taylor slowly began to show improvement to the point where there was discussion of her being discharged in May 2015 with only needing to go home on oxygen. She no longer needed a breathing tube and was on the nasal cannula.
But during a meeting with her neonatologist, my husband, and my parents which was meant to discuss her progress and discharge, we were told that Taylor needed to be transferred ASAP to CHOP due to respiratory distress symptoms she was displaying. At 5 months of age Taylor once again had a breathing tube placed in her and was airlifted to CHOP due to worsening pulmonary hypertension brought on by chronic lung disease. Taylor was also fighting off 2 viruses much like a common cold to us but for her fragile body, it brought her very close to death. Her liver became enlarged and she was retaining fluid. She was so sick that she was almost unrecognizable. After months of ups and downs with her health, we had a series of meetings to discuss having Taylor trached due to her now having a breathing tube for some time. After much discussion, we agreed to have Taylor trached. Taylor seemed to take off in terms of improvement after that.
Taylor was discharged from CHOP in January 2016 at 14 months old and was set up with Speech and Physical therapies to work on her continued development. At this point, she couldn’t crawl, sit up on her own or walk.
Now, at 30 months old, Taylor has done tremendously well and continues to show great progress. She is crawling, walks with some assistance, uses sign language to communicate and taught herself to plug her trach to vocalize. She is one of the happiest babies I know!
If it weren’t for my faith and support from my family and medical staff who became like family to me, I don’t know that I would have made it through this stressful and overwhelming ordeal.
Taylor is living proof that God is still in the miracle making business!